Update 7/23

I neglected to mention in my last post (but it was probably obvious) I have a new laptop, it feels great to not burn my legs while I try to balance that heavy dinasour. I also made some cosmetic changes to the page, as well as launched my own Youtube channel 

take it slow

it's important to take it slow when there are temperature fluctuations, I've done my usual running* around this weekend and I noticed my vision doubling before. Perhaps I ran too much? Maybe its only the heat. Regardless of the cause it serves as a good reminder to slow down, I turned the ac down and I'm in for the day as it seems. For anyone with Multiple Sclerosis the sun and warm temps can be a real burden at times, it's always best to err or on the side of caution especially to prevent a relapse.

(*of course I didn't run, I use a cane for pete's sake)

First week of April is done

I'm kind of mad, my week has started out with a screeching halt, for the past two days I've been walking around kind of wobbly and in more need of my cane, as opposed to strolling about the house. I stayed home from the gym so I wouldn't aggravate anything further. I know I've mentioned this before but I tend to peter out just right before my infusion is scheduled, it's more of a psychosomatic reaction that I'm having. The important thing is to jump back on the exercise train right after my infusion. I have a readathon coming up and I want to feel tip top, I plan on doubling my B12 pills that day.

ongoing adventures

kind of a continuance on my last posting, I had stayed home rather than go to the gym because I've been having some joint pain due to my .... impromptu 2 mile hike last week. to make matters worse for me my specialty pharmacy was switching and there was a delay in my tysabri being sent to the infusion center. After making alot of phone calls to shake peoples cages a bit I had finally managed to schedule infusion #19 a full eight days after the 28-35 days window between infusions. I was really starting to freak out but I feel greatly alleviated today, I feel a psychosomatic sense of strength once I finish up with the infusion. I say it's psychosomatic because that isn't the way that tysabri works but darn it, I do feel like Popeye once I'm done and I'm resting at home.   Remember to never give up when you are being given the run around by the drug companies or in this case specialty pharmacy.

I don't celebrate

Just as the title suggests I won't be celebrating my latest anniversary, it has been two years since I was officially diagnosed as having Multiple Sclerosis. I can remember it as it were yesterday, I was in the hospital because I was I kept falling at home and I was completely zapped of strength to stand back up not to mention if I were to manage standing up, it was doubtful I could keep my balance. My wife and I were still a little clueless as to what could be wrong, but the day after being admitted I was alone in bed when the attending neurologist, and might I add the Dr with the WORST bedside manner in the world, she waited till I was alone and half asleep and just came out and said Yeah, It's MS. The next day in front of my wife she started going on about the possibility that it could be HIV. Thankfully it wasn't and thankfully I now have a neurologist that minored in Tact and bedside manner. In the past two years I have tried my darnedest to get educated about MS and try to share info (as is seen here)

So in a way I guess I've just lied, I should celebrate the fact that I'm alive and the fact that the MS hasn't really progressed, I had optic neuritis that went from a minor brown  obstruction in vision to just one eye being a tad crossed, or rather a bit off center (as you see in most MSers).

re: handwriting atrophy

just a quick mention since I noticed that my original posting gets a lot of hits. I have a revised opinion on the matter, I don't have conclusive proof that my handwriting was directly changed, (since I can't read my MRI). Thinking on the matter (no pun intended) I believe that it's just a case of falling out of practice, I mostly type, there's not too much handwriting that I need to do