Monday, August 3, 2015

soooo as I was saying

To paraphrase Mark Twain, Rumors of my blogs death have been greatly exaggerated, even though technically this was never a job it had lost its fun but I kind of missed it in a way. During my intelligent time (the times just before I get in the shower, the times that I sit there on the throne waiting for my body to do it's thing)  the most coherent thoughts and ideas bounce around in my head and it was time to voice my opinion again but this time I'm not going to feel guilty for voicing my opinion.

sooo it's been a year and the most significant thing (MS wise) that has happened to me is I have been on Tysabri for 5 years (60 infusions). I feel good or as good as I can - the Tysabri does right by me and I can't complain. I'll do my best to write

Thursday, May 22, 2014

it's still May

I often find myself repeating the same problems over and over again, ya see I do have good ideas swimming around in my head (as Swiss cheesed as it might be) I don't mean to repeat myself a lot but my biggest problem in life in general as well as this blog. I mentally stutter a lot I know it comes with the territory but I always double back on my thoughts and ideas because I doubt myself... then some time will pass and I think  "wow I haven't blogged in a few months" then again I double back, 'Na what do I have to write about?' or I think to myself if I read one more time that drug X is doing so and so I'm going to throw my laptop (going back to the whole  too much info thing from last post) then before I know it its been a year or more and I start to feel guilty, Oh don't get me wrong I long ago abandoned the fact that I'm not an advocate mainly because I don't feel like leader of anything, but sometimes I guess I could be 'observed' if that makes any sense.
Tysabri wise I'm feeling safe and sturdy, my last MRI was a few months ago and it didn't show any new growth.
grumpy old me

Thursday, May 8, 2014

ok so I'm still here

I really haven't given up on the blogging process the only excuse - only reasonable excuse is burn out, physical and information burn out and what I mean about information burn out is the dozens of MS sources that I have throwing information at me, information is good but if you take in so much it can fry your brain. Blogging has been fun but I built it up too much in my brain and since I fell off the radar I've been enjoying my anonymity too much pressure  I haven't fully disappeared I have been enjoying tumblr which is a micro-blogging site
I have also been into Munny figures, I try to use a work area that I set up for myself in the garage however that usually doesn't work because the garage gets kind of hot and I can't do much
tooling around with this Munny

Saturday, October 19, 2013

gearing up for Movember, need feedback

Ok so I know that I'm a very absent minded blog keeper but as you know (or as I write here every few months) I am looking to change that. One of the things that I truly hate about having Multiple Sclerosis is that I am VERY easily distracted because of my lack of focus, that little sticking point just blends itself into other areas of my MS laziness (a blend of lack of motivation/zero energy/mood- anger) oh the joys of our illness. Sorry I had to have a little whine- my writing style is anything but perfect or normal, as you know or are about to find out- I am trying to impart my knowledge and yell a lot in the process. I am taking part in Movember  which is a light hearted yet hirsute challenge for men to grow a mustache while fundraising for men's health issues which include prostate and testicular cancer as well as mental health issues. I want to participate in order to shine a light on the issue of men and MS - Multiple Sclerosis is two to three times more common in females than males. So I am going to forth with a "lip broom" and talk about some health in the process, I still don't know how often I'll update (daily versus 2-3 day intervals)
have to start fresh but as you can see its very easy

Thursday, August 1, 2013

3 year and seven month check in

ok so its been a while and I haven't been posting for good reason, a while ago I started letting my low self esteem dictate the tone of the blog, and that was contrary to what I initially was intending to do. I had some type of delusion of being a "go to guy" of being an advocate. Like many MSers who take an interest in documenting my ordeals I thought that I could start to pass on a wealth of knowledge .. and so on and so forth. My only setback there is MY MS brain likes to forget ... a lot. As I've stated in previous posts I have a habit of jumbling my words and thoughts.

While I believe I'm rebounding in the self worth and attitude portion of my life so I'll do my best to come back, it may be full of self deprecation and it may be sporadic but I believe that I should keep trying. I may not be a fountain of knowledge but my little point of view is still worth sharing.

Saturday, February 2, 2013

a wellness check

... and by wellness check I mean that I'm writing this so that my occasional readers can know that I am alive. I have no excuse my my prolonged absence but you can imagine or agree that this MonSter always has different plans for us. My problem (besides mustering up energy) is my motivation always seems to seap out of me, I'll have a standard day- think of a possible subject (or something that happened to me in my day) and the voice in the back of my head starts in with - "well that''ll never work" or "Your sentences don't make any sense".

As you can plainly see I have no self esteem but I only mention that so the reader can see that they aren't alone and more as a form of do it yourself therapy (i.e. tell myself that I'm ok)... because I'm good enough, I'm smart enough and Goddone it, people like me. Sarcasm and old SNL lines help me

I'm also plagued by my continuing grumpiness, I tend to do well enough when I'm in a hermit like situation, with the occasional coffee shop trips with my mom and my 3X a week gym visits with my dad I do ok. (I live with my wife and cats whom are all within 10 feet of my position on this couch) ok so I'm not a TRUE hermit.

I wrote this post yesterday and just noticed some text and color errors on the page, as much as I tried to fix it 'blogger' is choosing to not be my friend today :-(

Sunday, December 23, 2012

Greetings to all, I am in the middle of a holiday break at my in-laws house 900 miles from home and at least 25° colder than I like it. Nonetheless it is a fun yet challenging time for me, I don't know if its because I'm in a different home or because I'm not drinking enough water but, well lets just say that I'm being reminded by my own body (and bathroom visits -yuck-) that I need to always be on top of my water intake. As an MSer you might take it for granted you might even forget what a blessing water is for your body, water helps with digestion (while a colder climate and a stressful trip won't) . I guess I'm just doing this also as a psa for anyone stateside during this time because its getting colder out there.