in addition

sometimes I struggle with typing here because my thoughts are all over the place. Like some MSers I have cognitive setbacks so I figured I can speak on a video blog (Vlog). It may come back to get me in the end if I can't speak my thoughts in a clear consistent manner. Well I gave it a try, since this was my first time I took it as an opportunity to introduce myself. Vlog thru Youtube My intention is to share more through Youtube, both info and some humor (if I can manage that)

Ugh well, what can I do

My laptop shut itself off about 4 times today- Well I guess it's a good thing that I'm not one for words because starting this afternoon I am doing this off of my phone ONLY - my laptop is old and was a hand me down from some friends.. Laptops might be cheap but having MS and being on a budget the laptop might as well cost a million dollars /:- l .. So as any MSer does I adapt it, it may not be great but at least I got something..

Steady as she goes

For me, the mantra for this upcoming week will be steady as she goes. As I previously posted I took a spill a few days ago, I fell just to the side of my tailbone - I'm not in a tremendous amount of pain and although I did not see a doctor I know that I have to try to stay off my tuchus which is easier said then done when you're disabled. I've kind of been experimenting with a sideways sit (one cheek higher than the other but when all else fails I retreat to the bedroom to laydown (sideways). Nothing is impossible just have to try to tweak my upcoming workout routine for this week. Instead of sitting at the stationary bike after I get off the treadmill I'll be staying on the treadmill longer at a slower speed in order to not burn out. The Raccounters "steady as she goes"

Status Update 7/3

working backwards from this posting time, I fell in my kitchen, fell backwards right on my ass, fell HARD on my ass, it's a good thing that I have cushion back there. It wasn't like one of my typical falls, my legs didn't get caught up in something and I didn't trip- it was more of your classic feeling like you just got unplugged so your standing-up power was taken away. Before that, this afternoon my neighborhood had some strong wind gusts that knocked down some power lines. I endured at home for about an hour before the heat forced me to find a better environment. Fast forward to two hours later and the power was finally restored. Aside from my butt pain I feel sluggish, my main priority is to hydrate for my Tysabri infusion on Friday. and WAY before the blackout I was trying to look into my web cam difficulties no luck just yet.

branching out

well, this may be a weak effort right now, kind of amateurish but I would like to try some Vlogging along with this main blog to try to spread the news about MS and MS centered ideas as I see them this laptop doesn't have a webcam and my wife's laptop needs some updating for the webcam to work on youtube so I used my phone, not to bad I think.


my first and brief Vlog

or if that doesn't want to work for you, Youtube access

Life Update ... me just complaining 6/24

I'm doing my darnedest to be motivated, this weekend seems to be a wash literally my area in Florida is getting the tail end of a Tropical Storm that was forecast to go toward Texas but seems to be camping out close-by. I'm still recovering from what I initially thought was a fall but when I thought about it a bit harder turned out to be me tripping over my untied shoes (at the gym). Aside from my ego I received a bruise on my left knee, I have to remember to get myself some Velcro strap shoes. Aside from that I was in talks to be part of a panel on Wegohealth.com, at least I thought I was, I haven't heard back from the coordinator, I think it would be interesting to share info, I've joined their web-community but I really haven't made friends- meh, all in a days work for a grumpy MSer

M.S is B.S

So not more than 10 minutes ago I found out that Jack Osbourne has Multiple Sclerosis, it's rather devastating news for him and his family (especially since he recently became a father) I wish him and his family nothing but the best. Multiple Sclerosis is a disease that attacks the central nervous system I was diagnosed in January of 2010 and I try my best to educate and share info where I can. It's rather unfortunate that it's usually at moments like these but that's just how MS is, Multiple Sclerosis doesn't care that it leaves most people unemployed and unable to work, it doesn't care that you need to be able to see and it doesn't care that you would like to walk thirty or even three feet and not look like you're drunk. But the attitude that I've tried to adopt (sometimes stronger sometimes weaker) is that this disease will not have ME I will destroy MS and show it that I WILL NOT BE IT'S BITCH! it helps to see passed the setback or tragedy.

in this scenario I or the MSer is the bunny and MS or Multiple Sclerosis is the wolf
well the idea is more about the attitude that one should have about it anyway.