Showing posts with label support groups. Show all posts
Showing posts with label support groups. Show all posts

Thursday, August 4, 2011

there's strength in numbers

no matter what the diagnosis, people shouldn't face a disease alone. There's a certain freedom in commiserating with others in your situation, whether it be an in person group or an online forum - sharing ideas and stories with your contemporaries goes a long way in helping people cope and deal with their situations and lets people know that they are not alone. - All that said, I came back from my in-person support group for my multiple sclerosis just now and I feel pretty good, it was good to hear that my own neurologist is going to be involved in some upcoming medication studies and I also got to see some of my friends that I hadn't seen in a few months.... I wanted to share this because I feel it's never too late to speak your mind and have an open ear to listen at the same time.

Sunday, March 20, 2011

Last year right after I was diagnosed I was in full "ignorance is bliss"mode mostly because I didn't want to get my hopes up, also because my initial neurologist had absolutely NO bedside manner. So rather than suffer out loud I chose to isolate myself and learn as little as possible. Needless to say staying uninformed is absolutely the worst thing to do. Toward fall of 2010 I started attending a monthly support group, I really recommend a support group to any person with MS (regardless of stage) and for family members as well. I also recommend getting involved in your online MS community as well since it may be a bit easier to navigate it. Aside from using facebook and twitter (and this blog) I also use google reader to organize all my blogs together into a    neat and convenient location. Staying uninformed might delay possible progress that you can make.   I'm using my phone to piece this together so please excuse my run-on sentences and the jumbled together look of these words.