About a year ago, a few months after I was diagnosed with Multiple Sclerosis, I encountered what looked like a sun spot or halo in my right eye. After going to my neurologist and consulting an optometrist, I learned that it was optic neuritis http://www.mult-sclerosis.org/opticneuritis.html. It thinned out with help of IV steroids but the steroids didn't help my confidence when it came to reading. I had amassed a small collection of books the month prior to my MS diagnosis and I had left them exactly where they were, on a shelf collecting dust.
It bothered me that aside from the physical limitations that I was experiencing with my legs and balance, I was limited in my vision as well. After a few months of nothing but TV, TV and more TV, I was set to go back to the optometrist. (I'm jumping around in time a lot; this was throughout the span of about 8 months, 2-3 visits to this Dr. and inclusion of Tysabri in my treatment.) The optometrist performed field of vision tests on me to check my peripheral vision (which was previously affected) and a battery of other tests. My vision was improving. It wasn't the best in the world, but I was thankful for any improvement! So a few weeks later I went on a road trip with my wife to Ohio to visit family. Along with my standard luggage, I decided to stop feeling sorry for myself and bring a book or three. It's a good thing that I brought those books along; I managed to read two out of the three. I was very excited about that accomplishment. No one should ever let themselves get talked out of achieving the goals that they set out for themselves. With me, I think I was just a combination of fear and me just psyching myself out which in retrospect is probably typical of not just myself but other MSers.
Thursday, June 2, 2011
Sunday, May 29, 2011
well I celebrated World MS Day by traveling a states away from home via Continental, good airline. Tomorrow I will make my return home via USAir, I'm not really worried about the traveling, I figure I'm home free once the TSA agent does his required groping, that's one of the perils of having to use a walker and not being able to stand for the body scanner. I'm not that bothered by the pat down and aside from my sarcasm I really don't see why most people are scared by the process.