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Wednesday, May 23, 2012

My new War!


My last infusion that was twelve days ago and I'm feeling good for the most part except for a anti-social fit that I had this week. I'm considering deleting my second profile on Facebook because it's more trouble than it's worth. I made that profile to learn and to share information, now it seems that all that happens is I see people denigrating my treatment choice. I take it personally because Tysabri is seen by many as being dangerous because it carries the extra risk of PML Progressive Multifocal Leukoenephalopathy. It's an extra burden that I'm willing to risk it because even after twenty two infusions I FEEL GREAT! I had my little fit because it seems to me that the biggest opponents of my treatment are believers of the liberation treatment or CCSVI. It's very disheartening to me at times but I try to look beyond it. I'm not against any treatment but I come to realize that people will still have their opinions- hence my dilemma. My concentration has been further blurred on FB by OTHER causes, although very worthwhile it has shifted my focus from what I'd made the profile for, no more craziness. Make of this what you will, I'm not trying to argue I'm just tired of bullshit