tag:blogger.com,1999:blog-16652291461859987762024-03-05T03:46:39.100-05:00mylifeonMarSI was diagnosed with multiple sclerosis in 2010. I'm currently on disability and not able to work because of cognitive difficulty. I'm trying to deal with daily life and bringing you along on my journeycubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.comBlogger187125truetag:blogger.com,1999:blog-1665229146185998776.post-17946361941594288282022-12-23T11:26:00.001-05:002022-12-23T11:26:25.228-05:00putzing around in what I use to do<div>I have a genuine desire to get ideas out there, for some reason that escapes me I get really really creative in cold weather. I'm middle aged enough and confused enough to not understand substack and I don't want to monetize things. way long ago when I was voraciously reading Kerouac I just wanted to share ideas and stories. this is before anxiety and depression choked that ambition out of me, I'm medicated and healthy enough to want to continue to re-attempt. </div><div class="separator" style="clear: both; text-align: center;">
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</div><div>like most situations I just genuinely assume that my words (vocal or written) will </div><div>find an audience and if not then the words will sink into obscurity.</div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div><div><br></div>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-28339881633241600142021-10-24T14:36:00.000-04:002021-10-24T14:36:36.425-04:00flummoxed I'd like to start out slowly and eventually spew out my ideas and thoughts over time because according to what Alexa just answered I haven't done this "blog" in 2,273 days or 6 years and 2 months ago. <div><br></div><div>I'm still an insecure person with MS, I won't fill up space today with the obvious things so I'll try this from another angle. </div><div><br></div><div>I'm now a homeowner meaning I busy myself with work around the house that in most cases isn't exactly necessary (pruning trees and such) since I don't work out of the house because of disability whenever I'm not trying out busy work in the yard (like 99% of the time) I'm watching TV, much like the lack of posts I tend not to read to much because my attention tends to flutter around a lot like a feather during a storm. </div><div><br></div><div>I can't exactly recall the DMD I was on in 2015 but if I didn't mention it I'm currently taking the generic version of Tecfidera (Dimethyl Fumarate) like any DMD it is what it is (essentially a crap shoot that you pin your hopes to). </div><div><br></div><div>I'm also an uncle again twice over, my brother and his wife welcomed twins in 2017. Me myself I've discovered over time that I do NOT like responsibility let alone being responsible for another life, don't get me wrong I think breeders are cool it just ain't my bag, hell I feel bad enough when I yell at one of my cats if they're meowing incessantly to enter into a locked room. </div><div><br></div><div>soo I'm ✌ peacing out for now and I honestly want to make this a habit again because...... like I used to do in the 90s (sooooooooooo fucking long ago) I would constantly scribble in notebooks 📓 and I also wrote a short story or 5 lol I've had this idea ruminating in my head for literally the time since the last blog post and if I wait ANY longer it'll change AGAIN and become just that much more complicated. much like the stories from the 90s it serves as an outlet a catharsis and hopefully I can get the ball rollong</div>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-45091562517959861062015-08-03T19:52:00.001-04:002015-08-03T19:52:18.075-04:00soooo as I was saying<div class="separator" style="clear: both; text-align: center;">
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To paraphrase Mark Twain, Rumors of my blogs death have been greatly exaggerated, even though technically this was never a job it had lost its fun but I kind of missed it in a way. During my intelligent time <span style="color: #666666;">(the times just before I get in the shower, the times that I sit there on the throne waiting for my body to do it's thing) </span> the most coherent thoughts and ideas bounce around in my head and it was time to voice my opinion again but this time I'm not going to feel guilty for voicing my opinion. <br />
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sooo it's been a year and the most significant thing <span style="color: #666666;">(MS wise) </span><span style="color: black;">that has happened to me is I have been on Tysabri for 5 years (60 infusions). I feel good or as good as I can - the Tysabri does right by me and I can't complain. I'll do my best to write</span>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-45492936312697720052014-05-22T15:46:00.003-04:002014-05-22T15:46:41.948-04:00it's still May<div abp="126">
I often find myself repeating the same problems over and over again, ya see I do have good ideas swimming around in my head (as Swiss cheesed as it might be) I don't mean to repeat myself a lot but my biggest problem in life in general as well as this blog. I mentally stutter a lot I know it comes with the territory but I always double back on my thoughts and ideas because I doubt myself... then some time will pass and I think "wow I haven't blogged in a few months" then again I double back, 'Na what do I have to write about?' or I think to myself if I read one more time that drug X is doing so and so I'm going to throw my laptop (going back to the whole too much info thing from last post) then before I know it its been a year or more and I start to feel guilty, Oh don't get me wrong I long ago abandoned the fact that I'm not an advocate mainly because I don't feel like leader of anything, but sometimes I guess I could be 'observed' if that makes any sense.</div>
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Tysabri wise I'm feeling safe and sturdy, my last MRI was a few months ago and it didn't show any new growth. </div>
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cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-13077988390971254772014-05-08T15:36:00.000-04:002014-05-08T15:36:11.394-04:00ok so I'm still here<div abp="128">
I really haven't given up on the blogging process the only excuse - only reasonable excuse is burn out, physical and information burn out and what I mean about information burn out is the dozens of MS sources that I have throwing information at me, information is good but if you take in so much it can fry your brain. Blogging has been fun but I built it up too much in my brain and since I fell off the radar I've been enjoying my anonymity <span abp="620" style="background-color: black; color: #eeeeee;">too much pressure </span> I haven't fully disappeared I have been enjoying tumblr which is a micro-blogging site</div>
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I have also been into Munny figures, I try to use a work area that I set up for myself in the garage however that usually doesn't work because the garage gets kind of hot and I can't do much</div>
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cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-16997831345398795272013-10-19T14:40:00.001-04:002013-10-19T14:42:15.823-04:00gearing up for Movember, need feedback<span style="color: black;">Ok so I know that I'm a very absent minded blog keeper but as you know (or as I write here every few months) I am looking to change that. One of the things that I truly hate about having Multiple Sclerosis is that I am <strong>VERY </strong>easily distracted because of my lack of focus, that little sticking point just blends itself into other areas of my MS laziness (a blend of lack of motivation/zero energy/mood- anger)</span><span style="color: orange;"><strong> </strong>oh the joys of our illness<span style="color: black;">. </span></span><span style="color: black;">Sorry<strong> </strong>I had to have a little whine- my writing style is anything but perfect or normal, as you know or are about to find out- I am trying to impart my knowledge and yell a lot in the process. I am taking part in </span><a href="http://us.movember.com/mospace" target="_blank"><span style="color: black;">Movember</span></a><span style="color: black;"> which is a light hearted yet hirsute challenge for men to grow a mustache while fundraising for men's health issues which include prostate and testicular cancer as well as mental health issues. I want to participate in order to shine a light on the issue of men and MS - Multiple Sclerosis is two to three times more common in females than males. So I am going to forth with a "lip broom" and talk about some health in the process, I still don't know how often I'll update (daily versus 2-3 day intervals)</span><span style="color: black;"> <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">have to start fresh but as you can see its very easy</td></tr>
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</span>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-65635142231156377242013-08-01T14:24:00.000-04:002013-08-01T14:24:33.314-04:003 year and seven month check inok so its been a while and I haven't been posting for good reason, a while ago I started letting my low self esteem dictate the tone of the blog, and that was contrary to what I initially was intending to do. I had some type of delusion of being a "go to guy" of being an advocate. Like many MSers who take an interest in documenting my ordeals I thought that I could start to pass on a wealth of knowledge .. and so on and so forth. My only setback there is MY MS brain likes to forget ... a lot. As I've stated in previous posts I have a habit of jumbling my words and thoughts.<br />
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While I believe I'm rebounding in the self worth and attitude portion of my life so I'll do my best to come back, it may be full of self deprecation and it may be sporadic but I believe that I should keep trying. I may not be a fountain of knowledge but my little point of view is still worth sharing.cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-79156021837174988602013-02-02T22:28:00.001-05:002013-02-03T13:09:01.136-05:00a wellness check... and by wellness check I mean that I'm writing this so that my occasional readers can know that I am alive. I have no excuse my my prolonged absence but you can imagine or agree that <span style="color: black;">this MonSter always has different plans for us. My problem (besides mustering up energy) is my motivation always seems to seap out of me, I'll have a standard day- think of a possible subject (or something that happened to me in my day) and the voice in the back of my head starts in with - "well that''ll never work" or "Your sentences don't make any sense".</span><br />
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As you can plainly see I have no self esteem but I only mention that so the reader can see that they aren't alone and more as a form of do it yourself therapy (i.e. tell myself that I'm ok)... because I'm good enough, I'm smart enough and Goddone it, people like me. Sarcasm and old SNL lines help me<br />
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I'm also plagued by my continuing grumpiness, I tend to do well enough when I'm in a hermit like situation, with the occasional coffee shop trips with my mom and my 3X a week gym visits with my dad I do ok. (I live with my wife and cats whom are all within 10 feet of my position on this couch) ok so I'm not a TRUE hermit. <br />
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I wrote this post yesterday and just noticed some text and color errors on the page, as much as I tried to fix it 'blogger' is choosing to not be my friend today :-(cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-88474552944105142702012-12-23T14:44:00.001-05:002012-12-23T15:00:02.272-05:00<div><p>Greetings to all, I am in the middle of a holiday break at my in-laws house 900 miles from home and at least 25° colder than I like it. Nonetheless it is a fun yet challenging time for me, I don't know if its because I'm in a different home or because I'm not drinking enough water but, well lets just say that I'm being reminded by my own body (and bathroom visits -yuck-) that I need to always be on top of my water intake. As an MSer you might take it for granted you might even forget what a blessing water is for your body, water helps with digestion (while a colder climate and a stressful trip won't) . I guess I'm just doing this also as a psa for anyone stateside during this time because its getting colder out there.</p>
<br/><img src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM62f_j5xki1HgIIAvnvsW07bc2Pwg-bx9RsgYDb2832_57Awp3BGUxL2WDO_eVdNgEgzX8qPXD_YuyjTDNJBMbiigJFYAwF09AUTnsglXlDludI8D0sOiFVQD7blDcFyLXXobZmL_280/' /></div>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0Shiloh, Shiloh39.81867 -84.22855tag:blogger.com,1999:blog-1665229146185998776.post-79219485108751158542012-11-22T12:29:00.000-05:002012-11-22T12:29:09.187-05:00being thankfulI guess I'm not as vocal as most folks when it comes to being thankful but I can assure you I am. On days like this before I go to my parents house and mix and mingle with my family I will be asked <strong>more than once</strong> How I'm doing, in situations where I mingle with my family or other folks who don't know how MS 'works' it can get frustrating. It can get frustrating being asked the same questions of 'When are you going back to work?' or being told ''but you look good'. <br />
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I try to take situations like these in stride, it's not anyones fault that they don't know (In most occasions I try to educate but once you explain it for the 8th time you get tired). <br />
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I am thankful especially this year because I feel a good moderate strength in my legs and although I did have a fall at the gym on Monday I am thankful that I can continue to build up my legs and I'm thankful that I can still use my legs (although with a cane, but still thankful!)cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-85232816694728568342012-11-19T10:54:00.000-05:002012-11-19T10:54:34.363-05:00live to fight on!well well well, there's no legitimate reason for my absence I guess I get caught up in mental hoopla of November but I'm glad to be back. The reason that I saw fit to blog this morning is regarding a mishap I had at the gym. My level of disability isn't extremely severe but it's severe enough that I need a cane because of my drop foot. I was at the treadmill as I usually start off my regimen I started at 3.0 at a quite brisk pace. I recently started using an older pair of sneakers because I thought they were somewhat cleaner (BIG mistake). I wasn't using common sense this morning because much like a tire gets worn or bald the same happens with sneakers, when I built up a gradual speed at one point my foot lost grip with the tread and as a result I ended up kneeling quickly and was launched backward and crashing to the ground.<br />
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<tr><td class="tr-caption" style="text-align: center;">worn shoes, BAD for MS</td></tr>
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In the war against MS I have slowly been getting used to my weaknesses, I am tough and I'm used to getting scraped knees. It's now just a matter of resting and working out another day. Even though I may not like the other shoes it's important for me to switch back.<br />
cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-59471840500278019742012-10-14T11:00:00.000-04:002012-10-14T11:00:15.457-04:00It was a valiant effort<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNN2X89LxGfHt3aUDKFM-_hUgd7spcaFqt8fbSPyKJ-SRXHvjPWXWFZSBmNx0M2KNM8dG3vVOqOHNAeEwoHpvdnmX3D3QsrRf0ta08hANnouTWEuLX5fjoCFkNO9IntKm_hVOAg5jSsPo/s1600/Dewey-Smaller.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="132" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNN2X89LxGfHt3aUDKFM-_hUgd7spcaFqt8fbSPyKJ-SRXHvjPWXWFZSBmNx0M2KNM8dG3vVOqOHNAeEwoHpvdnmX3D3QsrRf0ta08hANnouTWEuLX5fjoCFkNO9IntKm_hVOAg5jSsPo/s400/Dewey-Smaller.png" width="400" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s200/head.jpg" width="133" /></a>I tried my best but at the 13 hour mark I fell victim to a bunch of airborne germs that have been festering in my house ( I ain't mad at ya honey) . Paired together with some tooth pain and I didn't see getting very far in the readathon. From hour one I was reading at a snails pace but I guess if you choose a book that has a lot of Medical terms in it then you get what you ask for. I was reminded that having MS I will more often than not have cognitive issues and in those 'cog-fog's I can only do so much. Pair that together with the cold that I have and "Boom" the wheels on my mental train of thought re: reading will fall off and I'm forced to mentally pull into the station. Well it was fun while it lasted, I wanted to thank the cheer-readers that came and visited me, I want to thank the folks that stopped by to read my thoughts on what I had to say. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s200/monster.jpg" width="133" /></a>As far as future participation is concerned I have some thoughts on that, I do try to do my reading in the name of Multiple Sclerosis in order to bring awareness and understanding - I mistakingly choose books sometimes that are too technical and books that I shouldn't just breeze through, If I come back next April I would like to try something that doesn't require too much understanding, perhaps a Bio/autobio? Well regardless of my future choice I'm just glad that I tried. <br />
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For my fellow MSers <a href="http://24hourreadathon.com/">http://24hourreadathon.com/</a><br />
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For fellow readers and non-reading fans <a href="http://www.nationalmssociety.org/index.aspx">http://www.nationalmssociety.org/index.aspx</a>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-81289912307235579462012-10-13T20:34:00.002-04:002012-10-13T20:34:14.663-04:00Call of Cthulu Wrap up<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s200/monster.jpg" width="133" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s200/head.jpg" width="133" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s1600/cthulhu.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s200/cthulhu.jpg" width="180" /></a></div>
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The Call of Cthulu in a nutshell is just a great story, like I wrote in my last post it has kind of a Radio Play feel to it, <br />
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but before I go on <br />
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<span style="text-decoration: underline;"><strong>Mid-Event Survey</strong></span></div>
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1) How are you doing? Sleepy? Are your eyes tired? I'm ok, some minor jaw pain<br />2) What have you finished reading? 40% of one book** 10 % of another<br />3) What is your favorite read so far? The Call Of Cthulu<br />4) What about your favorite snacks? Chicken Wings! <br />5) Have you found any new blogs through the readathon? If so, give them some love!</div>
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** having MS and wanting to spread awareness I decided on a book that I had acquired around last Christmas regarding MS and Mental Health.. It was proving to be a bit too meaty for a readathon and I think I will continue it when I can take notescubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-34618903719183183472012-10-13T19:11:00.000-04:002012-10-13T19:11:23.822-04:00more on The Call of CthuluI just finished part two in The Call of Cthulu and I'm finding it a very engaging story. It's almost surreal in a sense, I can almsot see this as an old time radio show from the 1920's (the time it was written) at the same time it also reminded me of the South Park pardy of Cthulu, regardless of where your mind my wander this is definitly a story I'm enjoying (even at my leisurely pace) <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s400/monster.jpg" width="266" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s1600/cthulhu.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s1600/cthulhu.jpg" /></a></div>
cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-84725296761398278812012-10-13T17:52:00.003-04:002012-10-13T17:52:54.676-04:00New Book<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s200/monster.jpg" width="133" /></a>So far juat read part one of the first story in this anthology, The Call Cthulu by HP Lovecraft! This story has it all! Horrible disfiguired monsters, cults, maniacs!! I'm intrigued to see how this turns out, For a story more than eighty years old the story is packing quite a whallop! I can say that in an era before Gene Rodenberry and way before Stephen King, Mr Lovecraft certainly knew how to tell a story<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s1600/cthulhu.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjr2j8Do0TCiVq-naiekP8PS7xpFTfmQwIm1iUmrztSxbjUmdM75Ngzv35MzhjRPpCxt_tgr7ho9UVFgaBBtDs2nU1VdKcOAX7vvfgXVD-vmt2uKpQKy1gyBKfAX3KmSEVAmZu1fubh40k/s200/cthulhu.jpg" width="180" /></a></div>
cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-34402947838761493422012-10-13T16:44:00.001-04:002012-10-13T16:44:56.797-04:00A Change in the game! <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggo8O6RoCj4hYMFV3KVPJD1n7zoWObnBHOt135XgeaXNeGRBWaGSse0H-0CrGb_D4QH435FjAQ92m9jbxoDsGuqLb6RL3GpiLzgHtc6PcKVBvrv3Aim3dVjgdvaVYeMQqp84ZAft-ygfs/s1600/monster.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">BOOK B</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">BOOK A</td></tr>
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for the time being I have halted further reading of book A and heading to book B! M is for Monster, a nice way to get in the Halloween mood I think! Quick note, book A was fine but it's just making me nervous, considering it's about an immune disease that I have cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-8443772939513574062012-10-13T15:45:00.000-04:002012-10-13T15:45:15.792-04:00I am not good with math, it'll be 4PM EST soon<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a></div>
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I am really learning a lot here, I am about Half way into my first book (going slow because there are a lot of scientific terms and also this is a subject that involves me personally I don't want to ZIP threw it quickly) I thought I would take a second to give a shout out to worthy information centers RE: Multiple Sclerosis<br />
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<a href="http://www.msassociation.org/?gclid=CNPHqKTf_rICFY-6zAod9HAAUw">http://www.msassociation.org/?gclid=CNPHqKTf_rICFY-6zAod9HAAUw</a><br />
<br />
<a href="http://erasems.org/">http://erasems.org/</a><br />
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<a href="http://www.nationalmssociety.org/index.aspx">http://www.nationalmssociety.org/index.aspx</a>cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-31733432062152237852012-10-13T14:04:00.003-04:002012-10-13T14:04:49.875-04:00the 6th hour ends<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a>I hate to beat a dead horse* but.. as slow as I'm reading I am having a good time. :-) it's always helpful for me (or most people with MS) to get a refresher on other MSers and to take a glance at their coping skills and see what lessons could be learned. Patricia Farrell has done an excellent job (thus far) of presenting the stories of different MSers and how unpredictable the disease is <br />
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*the dead horse is my unhappiness about my slow reading which is due to my MS which I am reading about funny enough cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-73728799505263320802012-10-13T11:39:00.000-04:002012-10-13T11:40:22.654-04:00Making sense<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a></div>
Even though I was diagnosed with MS almost three years ago I am finding great and relevant info in my book selection <a href="http://www.amazon.com/Its-Not-All-Your-Head/dp/1932603956/ref=sr_1_2?s=books&ie=UTF8&qid=1350142272&sr=1-2&keywords=it%27s+not+all+in+your+head" target="_blank">Its Not All Your Head</a>, I'm being reminded of the choices that I make and how they effect my healing and my diseases progression. Aside from the seriousness of my book selection, I am having a great readathon thus far, one thing that I've had to keep in mind is that I've felt that i read at a sluggish pace I have to remember that the "thon" isn't a race, and that my cognitive setbacks (as I'm reading in my book) effect my memory and reading retentioncubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-30796351165898219032012-10-13T10:11:00.017-04:002012-10-13T11:41:12.912-04:00trudging along<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a></div>
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ok so I am learning a lot about myself here, A major issue that MS sufferers go through is "brain fog" or a haze as I like to call it. If you had a Pac-Man like auto immune disease fighting blindly against your brain you too would have issues with short term memoru recall... Mood is another big issue <br />
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I'm having an issue posting here, I think we all broke blogger :(<br />
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I decided to come back, it is weird to read about certain situations at the same time they are effecting your reading process.. hence the title of the post, trudging along<br />
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See ya in a bit<br />
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cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-9134171285474369982012-10-13T09:04:00.002-04:002012-10-13T09:04:56.064-04:00ok so I'm in this now<div class="separator" style="clear: both; text-align: center;">
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Hour 1, not to shabby, I'm reading It's not all in your head. By Patricia Farrelll PHD, I know that I selected a super serious book but Multiple Sclerosis is not a subject to be taken lightly. I haven't gotten extremely far because I am 'enjoying' some of the cognitive situations that I'm readding about (not really enjoying them) but again I'm just sharing my info here today to hope to share info between my two worlds My MS world and the reading world cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-64199959921307254192012-10-13T08:01:00.002-04:002012-10-13T08:02:27.325-04:00cutting it close GOOD MORNING! Time to start off on another reading adventure and I feel good, woke uwithout too many concerns, took my vitamins and I'm drinking my coffee. I'm in the process of starting and I thought I'd answer some questions!! <br />
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Introductory Questionnaire</h3>
1) What fine part of the world are you reading from today?<br />
2) Which book in your stack are you most looking forward to?<br />
3) Which snack are you most looking forward to?<br />
4) Tell us a little something about yourself!<br />
5) If you participated in the last read-a-thon, what’s one thing you’ll do different today? If this is your first read-a-thon, what are you most looking forward to?<br />
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1 I am from Port Saint Lucie Florida!! WOOP WOOP!<br />
2 It's not all in your head, a book concerning MS and behavior.. deep stuff but since I have MS I wanted to start off with something close to me :)<br />
3 lol Umm I guess my pretzels<br />
4 well I'm running late at the moment so I'm not prompt lol<br />
5 I wouldn't do anything differently! no regrets!!<br />
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ciao!! gotta gocubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-41596579321616471682012-10-12T13:27:00.004-04:002012-10-12T20:49:55.430-04:00<div class="separator" style="clear: both; text-align: center;">
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I'm kind of excited in the final preps for tomorrows readathon, at the moment all that's left is final preps for some snacks and just to rest up for tomorrow. Being in a 24 readathon AND having Multiple Sclerosis isn't an easy task but I gladly participate In the name of MS Awareness and remind my fellow MSers that it's still fun to read something that isn't a computer screen, or maybe to try audiobooks. <br />
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Participating is fun, you get to devote a huge chunk of time to shutting out noise and just diving into some good reading, After some coffee and an extra B12 pill tomorrow I should be raring to go, Having optic neuritis (or at least mild <a href="http://en.wikipedia.org/wiki/Optic_neuritis" target="_blank">optic neuritis </a>) it is difficult sometimes to read being involved in this event is really important to me, having MS - one the other issue(s) I face is cognitive, no real cure for that except maybe taking time outs and remembering that although it's supposed to be a 24 event it's not mandatory, What is important is to have fun and to try to write about it, whether on FB or your own blog.<br />
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<a href="https://www.facebook.com/readathon">https://www.facebook.com/readathon</a><br />
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<a href="http://24hourreadathon.com/">http://24hourreadathon.com/</a><br />
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My choices for tomorrow!<br />
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cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com1tag:blogger.com,1999:blog-1665229146185998776.post-6083518658177541842012-10-04T13:59:00.000-04:002012-10-04T13:59:03.255-04:00OK OK I'll stopIn a strange but understandable way I have set myself up for failure, (I'll get back to that in a sec) I keep forgetting one of the biggest stumbling blocks with my MS involves my mood (really for most of us or at least some of us), With the current atmosphere on TV, the Internet, and all around us it seems that a lot of folks are getting really charged up politically. I have tried not to get too judgemental here (at least on this blog. my Facebook page is another story) I continue to harp on this - I KNOW but I'm addressing it because I forget that MS controls my mood at times, this has to be pretty strong actually because I'm on Celexa and I <strong>still</strong> feel my attitude and mood shift at times.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzWSL9Wbp6CB3ILEyLOlTILQVcoA25OpJ5BjczZjXSKBvTG0voJvcjRErC7UustcpRKNNAwOUM7Xzd3bVUe6a9swkZ5OneWPPcrR0IC6u_YkM6eFnFrXxauVxt7pJ8icO22Rsa1SNbZnw/s1600/hothead.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzWSL9Wbp6CB3ILEyLOlTILQVcoA25OpJ5BjczZjXSKBvTG0voJvcjRErC7UustcpRKNNAwOUM7Xzd3bVUe6a9swkZ5OneWPPcrR0IC6u_YkM6eFnFrXxauVxt7pJ8icO22Rsa1SNbZnw/s200/hothead.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">ok I'm a bad actor, I'm supposed to be a hot head</td></tr>
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For me I don't believe it's a questiuon of dosage, my meds are working just fine I think, on the onset of my initial MS diagnosis I was extremely sad (for a few days BEFORE the diagnosis) and I couldn't stop, the Celexa mutes at the depression but sometimes the severe political... Angst seeps through and I believe in doing so I alienate friends (on FB) and potential friends here. So, even though it's a personal opinion situation I am ceasing <strong>hostilites </strong>for the time being. Of course the internet being what it is I reserve the right to do as I please but the emphasis is still there on the stepping down . cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0tag:blogger.com,1999:blog-1665229146185998776.post-87924823159028149092012-09-21T16:02:00.000-04:002012-09-21T16:02:17.567-04:00My Readathon Quandary! Tomorrow is Can Do MS day and I decided to pick my book (books) for next months Readathon, it may seem trivial to some but it is something for me to take into consideration. In past readathons I've read both fiction and nonfiction, what I'm stuck on is IF I dedicate my time to a nonFiction MS book then I don't want to make the mistake of buzzing through the book too quickly, and since I'm dedicating my time on behald of Multiple Sclerosis and MS Advocacy I always question whether I shouldn't be reading an MS focused book. <div>
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Right now as it stands there are two particular books that are leading the race</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCaDeWBcpRldLLzeWTOzZMH03whDyxWw_Ze-InPHp935y_xkv3SHvSS8I-mIs8GAaWuQ_BYn_AgMM69mqbkXI1NSTJXAaEe3YUvd780VP16-LmoUhH25qEV_gUmsNBnugt_WGEFImGthQ/s1600/head.jpg" /></a></div>
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<b>It's Not All in Your Head by Patricia Farrell PHD</b></div>
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it's common for MSers and to experience a wide array of issues and Dr Farrell deals with these issues in her book </div>
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(please be aware that since I'm deciding which books to read that I haven't READ them yet)</div>
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and <b>M is for Monster a Modern Bestiary of Classic Monsters</b></div>
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and just in time for Halloween a true scare fest!!</div>
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so far these books are leading the pack, eventual back-ups to these books include books by Palahniuk (which I have a few which I haven't cracked yet) and in a not so distant third place is </div>
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<b>11/22/63</b> an imaginative story set a midst the tumult of the Kennedy Assassination with a fictional story as the main focus.</div>
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I invite any input by fellow MSers or fellow Bibliophiles, my intended Readathon is on October 13th </div>
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Learn more here</div>
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<a href="http://24hourreadathon.com/" target="_blank">Deweys 24 Hour Readathon</a> </div>
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<a href="http://www.nationalmssociety.org/index.aspx" target="_blank">NMSS</a></div>
cubanrickhttp://www.blogger.com/profile/01659772465036650587noreply@blogger.com0