Greetings to all, I am in the middle of a holiday break at my in-laws house 900 miles from home and at least 25° colder than I like it. Nonetheless it is a fun yet challenging time for me, I don't know if its because I'm in a different home or because I'm not drinking enough water but, well lets just say that I'm being reminded by my own body (and bathroom visits -yuck-) that I need to always be on top of my water intake. As an MSer you might take it for granted you might even forget what a blessing water is for your body, water helps with digestion (while a colder climate and a stressful trip won't) . I guess I'm just doing this also as a psa for anyone stateside during this time because its getting colder out there.
Thursday, November 22, 2012
I try to take situations like these in stride, it's not anyones fault that they don't know (In most occasions I try to educate but once you explain it for the 8th time you get tired).
Monday, November 19, 2012
|worn shoes, BAD for MS|
Sunday, October 14, 2012
I tried my best but at the 13 hour mark I fell victim to a bunch of airborne germs that have been festering in my house ( I ain't mad at ya honey) . Paired together with some tooth pain and I didn't see getting very far in the readathon. From hour one I was reading at a snails pace but I guess if you choose a book that has a lot of Medical terms in it then you get what you ask for. I was reminded that having MS I will more often than not have cognitive issues and in those 'cog-fog's I can only do so much. Pair that together with the cold that I have and "Boom" the wheels on my mental train of thought re: reading will fall off and I'm forced to mentally pull into the station. Well it was fun while it lasted, I wanted to thank the cheer-readers that came and visited me, I want to thank the folks that stopped by to read my thoughts on what I had to say.
As far as future participation is concerned I have some thoughts on that, I do try to do my reading in the name of Multiple Sclerosis in order to bring awareness and understanding - I mistakingly choose books sometimes that are too technical and books that I shouldn't just breeze through, If I come back next April I would like to try something that doesn't require too much understanding, perhaps a Bio/autobio? Well regardless of my future choice I'm just glad that I tried.
For my fellow MSers http://24hourreadathon.com/
For fellow readers and non-reading fans http://www.nationalmssociety.org/index.aspx
Saturday, October 13, 2012
The Call of Cthulu in a nutshell is just a great story, like I wrote in my last post it has kind of a Radio Play feel to it,
but before I go on
2) What have you finished reading? 40% of one book** 10 % of another
3) What is your favorite read so far? The Call Of Cthulu
4) What about your favorite snacks? Chicken Wings!
5) Have you found any new blogs through the readathon? If so, give them some love!
** having MS and wanting to spread awareness I decided on a book that I had acquired around last Christmas regarding MS and Mental Health.. It was proving to be a bit too meaty for a readathon and I think I will continue it when I can take notes
I am really learning a lot here, I am about Half way into my first book (going slow because there are a lot of scientific terms and also this is a subject that involves me personally I don't want to ZIP threw it quickly) I thought I would take a second to give a shout out to worthy information centers RE: Multiple Sclerosis
*the dead horse is my unhappiness about my slow reading which is due to my MS which I am reading about funny enough
ok so I am learning a lot about myself here, A major issue that MS sufferers go through is "brain fog" or a haze as I like to call it. If you had a Pac-Man like auto immune disease fighting blindly against your brain you too would have issues with short term memoru recall... Mood is another big issue
I'm having an issue posting here, I think we all broke blogger :(
I decided to come back, it is weird to read about certain situations at the same time they are effecting your reading process.. hence the title of the post, trudging along
See ya in a bit
Introductory Questionnaire1) What fine part of the world are you reading from today?
2) Which book in your stack are you most looking forward to?
3) Which snack are you most looking forward to?
4) Tell us a little something about yourself!
5) If you participated in the last read-a-thon, what’s one thing you’ll do different today? If this is your first read-a-thon, what are you most looking forward to?
1 I am from Port Saint Lucie Florida!! WOOP WOOP!
2 It's not all in your head, a book concerning MS and behavior.. deep stuff but since I have MS I wanted to start off with something close to me :)
3 lol Umm I guess my pretzels
4 well I'm running late at the moment so I'm not prompt lol
5 I wouldn't do anything differently! no regrets!!
ciao!! gotta go
Friday, October 12, 2012
Participating is fun, you get to devote a huge chunk of time to shutting out noise and just diving into some good reading, After some coffee and an extra B12 pill tomorrow I should be raring to go, Having optic neuritis (or at least mild optic neuritis ) it is difficult sometimes to read being involved in this event is really important to me, having MS - one the other issue(s) I face is cognitive, no real cure for that except maybe taking time outs and remembering that although it's supposed to be a 24 event it's not mandatory, What is important is to have fun and to try to write about it, whether on FB or your own blog.
My choices for tomorrow!
Thursday, October 4, 2012
|ok I'm a bad actor, I'm supposed to be a hot head|
Friday, September 21, 2012
Friday, September 14, 2012
why I hate Romney and stopped talking about the MS nation in general.
Wednesday, September 5, 2012
Friday, August 3, 2012
Monday, July 23, 2012
Monday, July 16, 2012
Thursday, July 12, 2012
My laptop shut itself off about 4 times today- Well I guess it's a good thing that I'm not one for words because starting this afternoon I am doing this off of my phone ONLY - my laptop is old and was a hand me down from some friends.. Laptops might be cheap but having MS and being on a budget the laptop might as well cost a million dollars /:- l .. So as any MSer does I adapt it, it may not be great but at least I got something..
Sunday, July 8, 2012
Tuesday, July 3, 2012
Monday, July 2, 2012
my first and brief Vlog
Sunday, June 24, 2012
Sunday, June 17, 2012
|in this scenario I or the MSer is the bunny and MS or Multiple Sclerosis is the wolf|
well the idea is more about the attitude that one should have about it anyway.
Thursday, June 14, 2012
|this is a stock photo, I don't spray |
my cats with green liquid
Tuesday, June 5, 2012
Saturday, June 2, 2012
Wednesday, May 23, 2012
My last infusion that was twelve days ago and I'm feeling good for the most part except for a anti-social fit that I had this week. I'm considering deleting my second profile on Facebook because it's more trouble than it's worth. I made that profile to learn and to share information, now it seems that all that happens is I see people denigrating my treatment choice. I take it personally because Tysabri is seen by many as being dangerous because it carries the extra risk of PML Progressive Multifocal Leukoenephalopathy. It's an extra burden that I'm willing to risk it because even after twenty two infusions I FEEL GREAT! I had my little fit because it seems to me that the biggest opponents of my treatment are believers of the liberation treatment or CCSVI. It's very disheartening to me at times but I try to look beyond it. I'm not against any treatment but I come to realize that people will still have their opinions- hence my dilemma. My concentration has been further blurred on FB by OTHER causes, although very worthwhile it has shifted my focus from what I'd made the profile for, no more craziness. Make of this what you will, I'm not trying to argue I'm just tired of bullshit
Monday, May 14, 2012
last Friday before my infusion I had a minor fall in my living room, I hooked my long monkey toe around my cane (which was tucked to the side of the couch) I couldn't disengage my toe quick enough and I fell. No big whoop but I thought I'd mention it anyway. My big toe is a bit swollen and I'm just mad because I have to sit out from going to the gym for at least a few days. I might have perfected my falling technique but going to the gym on an unbalanced foot is not worth it.
|my monkey toes|
|it may not be too visible but theres a bruise there|
Thursday, May 10, 2012
|not exactly like the Disney scooter but close enough|
I have to say that I am impressed with the care that I received from the cast members, and for the most part my fellow guests were accommodating as well (most people see a big guy in a scooter and assume he's just being lazy, I think having my cane and AFO helped). Being disabled shouldn't stop anyone's fun, I am glad that the Disney Corp is so accommodating.
Sunday, May 6, 2012
|Adam Nathaniel Yauch (August 5, 1964 – May 4, 2012|
Thursday, May 3, 2012
Wednesday, May 2, 2012
|the treadmill in my gym is similar to this one but has a longer plastic "handlebar" area to grab onto|